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Deep Dive: Exploring My Lymphatic System with Lymphoscintigraphy
Deep Dive: Exploring My Lymphatic System with Lymphoscintigraphy Two weeks after my ICG scan in Oxford, I underwent a lymphoscintigraphy scan in London to assess my deeper lymphatic channels. During this procedure, infrared dye was injected between my big and second toes on both feet. Immediately after the injections, the first set of scans began. I was securely positioned on a bed that moved through an MRI-like machine. This initial scan consisted of two parts: a 5-minute sc
Jul 25, 20192 min read


The Oxford Lymphoedema Practice: ICG Lymphography
The Oxford Lymphoedema Practice: ICG Lymphography I recently attended an initial consultation at the Oxford Lymphoedema Practice with Professor Furniss which also included an ICG scan. My aim going into this appointment was to deepen my understanding of my condition, specifically identifying where the lymphatic defect lies in my leg and to explore possible surgical options tailored to my case. The appointment began with a questionnaire assessing the impact of lymphoedema on m
Jul 10, 20192 min read
Personal Thank You: Clatterbridge Lymphoedema Team
Personal Thank You: Clatterbridge Lymphoedema Team This post is a dedicated thank you to the incredible nurses I see every six months at the NHS WUTH Clatterbridge Hospital under the Lymphoedema Clinic. On days when both my body and mind feel heavy, they consistently lift the mood of each appointment and leave me feeling supported and hopeful. Despite me being a bit of a challenge; a young patient, a dancer and someone full of questions, they meet every session with patience,
Jun 9, 20191 min read
Six Weeks On: IPCT Update
Six Weeks On: IPCT Update Six weeks after completing my two-week intermittent pneumatic compression therapy (IPCT) treatment, I’ve now been remeasured and further steps are being planned. As expected, my leg has shown some slight rebound in certain areas, while in others, it has remained the same or even reduced further. Considering how much my activity levels fluctuate, especially on very active days, I’m pleased with the current measurements. Still, I remain focused and det
Jun 3, 20192 min read
Exploring Support: Applying for Disabled Students’ Allowance (DSA)
Exploring Support: Applying for Disabled Students’ Allowance (DSA) After a recent conversation with the nurses at Clatterbridge, they suggested that I may be eligible for a Disabled Students’ Allowance (DSA) under the long-term or chronic illness category. Until now, I’ve never really considered my lymphoedema as a “disability” or something to formally declare as an illness but after talking it through with others, it makes complete sense. Lymphoedema has a daily impact on my
Jun 1, 20192 min read
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