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Tracking My Lymphoedema Progression Over the Years: Leg Measurement Spreadsheet Below is an up-to-date record and accompanying spreadsheet detailing the progression of my lymphoedema, including excess limb volume percentages measured over time. This data reflects the impact of various treatments, surgeries and complex lymphatic drainage therapies I have undergone. Spreadsheet ↓ https://docs.google.com/spreadsheets/d/1oc7PzjB9nLh15NVJxAJv7_LllrdBWsXD7dx-YVdsaes/edit?usp=sharin

My Current Lymphoedema Management: Garments and Products Since my LVA surgery in 2019 which connected 7 lymphatic channels to my venous system, I have been using the following products daily to help manage my lymphoedema: Compression Garments: Mediven Forte Thigh High Class III – main daily wear Haddenham Healthcare Comfiwave Thigh High Class I – full nighttime wear and worn underneath wraps or pneumatic press Haddenham Toe Caps Class II – worn almost daily underneath daily c

A New Chapter: Becoming an Ambassador for the Lymphoedema Support Network I am incredibly excited to share that I have been chosen as the first official ambassador for the Lymphoedema Support Network (LSN). It is a genuine honour to be trusted with this role and I feel so grateful for the opportunity to give back to a charity that has provided me with such a supportive community during my lymphoedema journey. The LSN has been more than just a resource, it has been a safe spac

Expert Perspectives on Lymphoedema: What's Up Docs? Recently, I caught up on both episodes of ‘What’s Up Docs?’ focusing on lymphoedema and the lymphatic system. They were really insightful and engaging discussions which accurately captured the realities and challenges of living with lymphoedema. It was also fantastic to see Professor Kristiana Gordon featured as a guest speaker. Her expertise and dedication to the field make her a highly respected voice within the lymphoedem

Seeking Answers: Genetic Testing at St George's Hospital After a consultation at St George's Hospital, London with Patryk Gawrysiak, Dr Kristiana Gordon and Prof Sahar Mansour, I underwent genetic testing to explore the possible underlying cause of my lymphoedema. The appointment began with a detailed discussion of my medical history and the journey of my lymphoedema, allowing the team to fully understand my journey so far. This was followed by a physical examination of my le