Although my swelling might not look as extreme as the images that appear when you Google "lymphoedema," the mental and emotional strain it causes is very real and often invisible. As a young woman living in a society that places so much value on appearance, managing this condition can feel debilitating.
Whether I’m on a night out with friends, in a dance class, wearing shorts or a bikini in summer, or trying on a pair of jeans that don’t quite fit, there are constant little reminders of this part of me I never chose. Lymphoedema isn’t just a physical challenge, it’s a quiet voice in the back of my mind telling me I’m somehow less. That I don’t quite fit in.
I try hard to stay positive. I try to view my condition as a unique part of me, something that sets me apart rather than holds me back. Most days, I do okay but there are still moments and sometimes entire days, when it’s mentally and emotionally exhausting. When the self-worth dips and confidence takes a hit.
People often say things like, “I don’t even notice,” or “it’s just part of who you are" and while I appreciate the kindness behind those words, I will always notice. I always feel its presence, its weight.
I’ve become more open in speaking about my condition. I don’t shy away from explaining lymphoedema to those who ask with genuine curiosity but repeatedly sharing something so personal, something I feel so self-conscious about, can be hard. Explaining your difference over and over again is a reminder that it is a difference.
With lymphoedema awareness still so minimal in society, I’m learning to accept my body for how it was built and to embrace the individuality it gives me. I may carry this swelling physically but more importantly, I carry the strength that comes with facing it every single day.