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Very proud of my little big leg this week tackling Glastonbury Festival for the 4th year in a row. Walking 70miles/110km and over 150,000 steps in 6 days is challenge for anyone but with lower leg lymphoedema, it's an even bigger accomplishment. As each year passes, I notice that festival season and summer in general, becomes increasingly more difficult. Alongside the natural progression of my condition, the heat, standing for hours, walking around all day and a lack of my

Reflections on Jeremy Vine BBC Radio 2's Medical Monday: Why Words Matter Completely disheartened by the lack of awareness, lack of education and lack of compassion during Jeremy Vine's BBC Radio 2's Medical Monday segment on Monday 9th June 2025. Whilst I appreciate the intent was to spark interest and raise awareness of lymphoedema, hearing my condition be described as "unsightly", not once but TWICE, during the conversation is extremely hurtful. Members of the lymphoedema

Lymphoedema United: 'Meet The Members' Article As part of raising awareness and sharing my lymphoedema journey, I’ve written an article...

The Genetic Puzzle Behind Primary Lymphoedema: What the Genes Reveal After learning about genetic testing for primary lymphoedema at a...

Further Connections: Lymphoedema United Meet-Up 2 Similar to the Lymphoedema United meet-up I previously attended, this recent gathering...