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The Genetic Puzzle Behind Primary Lymphoedema: What the Genes Reveal After learning about genetic testing for primary lymphoedema at a recent community meet-up, I’ve become deeply interested in the different gene mutations linked to the development of this condition. Primary lymphoedema arises from malformations in the lymphatic system caused by abnormalities or mutations in certain genes. These genetic changes lead to the symptoms we know by affecting how the lymphatic vesse

Further Connections: Lymphoedema United Meet-Up 2 Similar to the Lymphoedema United meet-up I previously attended, this recent gathering provided a safe, welcoming space to share our personal experiences, challenges and self-care strategies. Held at Accelerate CIC in Hackney, North London, the event brought together a community of people living with lymphoedema, all eager to connect and learn from one another. We were joined by three nurses from the Accelerate lymphoedema cli

Connecting with the Community: Lymphoedema United Meet-Up As part of my efforts to connect more deeply with the lymphoedema community, I recently attended a community meet-up at St. George's Hospital. It was an informal and welcoming event, complete with tea, biscuits and open conversation. We shared our personal journeys, our biggest challenges and the top tips and tricks we’ve discovered along the way. The group was diverse in age and background, with a mix of both primary

Night-Time Relief: Haddenham Comfiwave Compression is absolutely vital to managing my lymphoedema. While I rely on my Mediven Forte Thigh High Class III compression during the day and really do love how supportive and structured it feels, I’ve long been searching for a night-time option that’s both comfortable and genuinely effective. After much trial and error, I finally found success with the Haddenham Thigh High Comfiwave compression garment. Its ridged texture provides ge

Revisiting IPCT Treatment: A New Test Post-Surgery Nearly six years after undergoing LVA surgery, I’ve returned to Clatterbridge Lymphoedema Clinic for two rounds of intermittent pneumatic compression therapy (IPCT) treatment combined with 8 day bandaging. Before surgery, I found this treatment offered some temporary relief but any reduction in swelling was usually short-lived with fluid quickly returning once therapy ended. However, post-surgery, I’ve noticed a significant i