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Very proud of my little big leg this week tackling Glastonbury Festival for the 4th year in a row. Walking 70miles/110km and over 150,000 steps in 6 days is challenge for anyone but with lower leg lymphoedema, it's an even bigger accomplishment. As each year passes, I notice that festival season and summer in general becomes increasingly more difficult. Alongside the natural progression of my condition, the heat, standing for hours, walking around all day and a lack of my nor

Reflections on Jeremy Vine BBC Radio 2's Medical Monday: Why Words Matter Completely disheartened by the lack of awareness, lack of education and lack of compassion during Jeremy Vine's BBC Radio 2's Medical Monday segment on Monday 9th June 2025. Whilst I appreciate the intent was to spark interest and raise awareness of lymphoedema, hearing my condition be described as "unsightly", not once but TWICE, during the conversation is extremely hurtful. Members of the lymphoedema

Lymphoedema United: 'Meet The Members' Article As part of raising awareness and sharing my lymphoedema journey, I’ve written an article for Lymphoedema United featured on their ‘Meet The Members’ page. Lymphoedema United is a UK-based group dedicated to supporting individuals living with lymphoedema. Their free membership offers a comprehensive hub of information, guidance and resources for everyone in the community. The organisation supports not only those living with lympho

The Genetic Puzzle Behind Primary Lymphoedema: What the Genes Reveal After learning about genetic testing for primary lymphoedema at a recent community meet-up, I’ve become deeply interested in the different gene mutations linked to the development of this condition. Primary lymphoedema arises from malformations in the lymphatic system caused by abnormalities or mutations in certain genes. These genetic changes lead to the symptoms we know by affecting how the lymphatic vesse

Further Connections: Lymphoedema United Meet-Up 2 Similar to the Lymphoedema United meet-up I previously attended, this recent gathering provided a safe, welcoming space to share our personal experiences, challenges and self-care strategies. Held at Accelerate CIC in Hackney, North London, the event brought together a community of people living with lymphoedema, all eager to connect and learn from one another. We were joined by three nurses from the Accelerate lymphoedema cli